Friday, July 13, 2012

Disability Project-Cerebral Palsy


About Cerebral Palsy
Cindy Halfman and Jennifer Hurtado 
Description:
·       group of disorders relating primarily to motoric issues (lack of coordination and control) caused by neurologic or nervous system damage, occurring between the prenatal period and two years of age while the brain is developing
·       presence of other impairments, such as problems with sensation, speech, vision, hearing, seizures, and intellectual disability, depends on the area of the brain damaged
·       causes:
o   70% from prenatal causes (brain injury, infection, abnormal brain development)
o   20% from brain injury during birth
o   10% from injury after birth (infections like meningitis or encephalistis, brain injury)
·       risk factors include (but are not limited to) premature birth, low birth weight, oxygen deprivation, and maternal issues such as infection or blood clotting problems
·       often diagnosed due to developmental delays hitting motor milestones (e.g., rolling over, sitting up, etc.); confirmed through measures such as CT and MRI
·       5 types and common symptoms:
o   spastic
§ most common type, 70-80% of cases (Reaching for the stars)
§ stiff muscle contraction impacting legs
§ paralysis
§ abnormal gait
o   dyskinetic
§ impacts muscles in the limbs and potentially face and tongue
§ abnormal writhing movements
§ commonly have speech issues due to dysarthria
o   ataxic
§ balance and depth perception problems
§ difficulties coordinating voluntary movement
o   hypotonic
§ poor muscle tone and increased joint mobility
o   mixed
§ mixture of characteristics from other types, most commonly of spastic and dyskinetic cerebral palsy

Prevalence:
·       2 out of every 1,000 newborn children
·       40% of cases are considered severe
·       most common motor disorder in children
·       2nd most common disability in children (behind autism)

(Above information provided by website resources.)

Effects on Language and Literacy:
Cerebral palsy is primarily defined by motor issues rather than intellectual deficit.  Huge variance exists in the cognitive abilities of people with CP depending on the type of CP, severity, and the location of brain damage.  As a result, abilities in all components of language and literacy vary as well and need to be considered on a case by case basis when working with children with CP.  The following are descriptions of trends that have been identified within the CP population in some areas of literacy and language development. 

Impact on the Development of Components of Literacy

·       Motivation (Majnemer, A., Shevell, M., Law, M., Poulin, C., Rosenabaum, P., 2010)
o   Children with minimal motor deficits and few deficits in communication, social, and self-care skills are typically more motivated.
o   The family’s perspective on the disability has an impact on the child’s motivation (e.g. if disability is a heavy financial and emotional burden on the family, the child is more likely to demonstrate low motivation).
o   Children with more motor deficits are more likely to have increased levels of emotional difficulty handing failure, which potentially impacts their motivation to attempt tasks they perceive as challenging.
o   Children with good motor function, few functional limitations, and good cognition demonstrate high levels of persistence in some everyday tasks.
o   Children with hyperactivity and lack of peer support demonstrate low motivation
o   Having low motivation affects the child’s potential and effectiveness of interventions.
o   Strategies to enhance motivation in children with CP include:
§  Encourage the child to be less dependent on an adult (e.g. parent, therapist); do not reinforce their dependence on an adult to complete most tasks
§  Structure activities so that the child experiences a sense of success at the initiation of the activity
§  Encourage group activities with fellow peers.  Group activities will provide the opportunities for peers to model behaviors

·       Comprehension (Asbell, S., Jacobus, D., Tubbergen, M.V., & Warschausky, S. , 2010)
o   The development of comprehension skills in children with CP parallel that of their typically developing peers, and the same variables can be used to predict their comprehension skills.
o   However, children with CP rely on phonological processing for longer.
o   Fine and gross motor abilities do not have an effect on reading comprehension.

·       Fluency
o   Motor issues will affect the child’s fluency but will be dependent on the type and severity of cerebral palsy. 
§  Children with a dyskinetic form of cerebral palsy are more likely to have dysarthria, which will impact fluency.
o   All aspects of fluency (i.e. rate, accuracy, and prosody) may be impacted.

·       Phonological Awareness (Peeters et al., 2008)
o   Intelligence and speech abilities in children with CP relate to their phonological awareness.
o   Kids with CP are at a disadvantage in terms of the development of phonological awareness, especially in cases where the children also exhibit speech problems.
o   The development of basic skills such as phonological awareness will impact the development of other skills in areas such as phonics and phonemic awareness.  The extent of this is most effectively examined on a case by case basis.

·       Writing
o   Variation in fine motor abilities will affect the child’s writing skills.
-language/literacy skills affected by motoric ability, if average receptive language - motoric ability can affect how child "plays" with language and speech and affects development of phonological awareness, phonics, phonemic awareness. 
 
Influence on the Language Foundations of Discourse

·       Expressive and Receptive Language (Pirila, S. et. al, 2007)
o   Children with more severe forms - severe motorically? of cerebral palsy demonstrate a higher prevalence of expressive and receptive language deficits compared to children with less severe forms of the disorder.
o   Results demonstrated that when comparing children with cerebral palsy and different levels of intelligence, children with an IQ above 70 had fewer receptive and expressive language deficits than children with an IQ lower than 70.

·       Phonological and articulation skills (Pirila et. al,2007)
o   Results demonstrated that children with a lower intelligence level:
§  Had more problems with phonological and articulation skills (compared to those with higher intelligence)
§  Used AAC devices more frequently (compared to those with higher intelligence)
§  Attended speech treatment more often than children with CP and a higher intelligence level

·       Narrative Abilities  (Holck, Sandberg, and Nettelbladt, 2010)
o   Children with CP perform slightly worse than typically developing peers in both linguistic and cognitive related narrative measures.
o   Areas of potential difficulty include cohesion in narratives, scarcity of essential information, inferencing, and recall.
o   Children with CP performed lower on literal comprehension questions at the text level compared to typical peers but equivalently at the sentence level.

References:
·       Asbell, S., Donders, J., Van Tubbergen, M., & Warschausky, S. (2010). Predictors of Reading Comprehension in Children with Cerebral Palsy and Typically Developing Children. Child Neuropsychology, 16(4), 313-325.

·       Geytenbeek, J., Harlaar, L., Stam, M., Ket, H., Becher, J. G., Oostrom, K., & Vermeulen, J. (2010). Utility of Language Comprehension Tests for Unintelligible or Non-Speaking Children with Cerebral Palsy: A Systematic Review. Developmental Medicine & Child Neurology, 52(12), 1098.

·       Holck, P., Dahlgren Sandberg, A., & Nettelbladt, U. (2011). Narrative ability in children with cerebral palsy. Research In Developmental Disabilities, 32(1), 262-270.

·       Majnemer, A., Shevell, M., Law, M., Poulin, C., & Rosenbaum, P. (2010). Level of motivation in mastering challenging tasks in children with cerebral palsy Annette Majnemer et al. Motivation in Children with CP. Developmental Medicine & Child Neurology, 52(12), 1120-1126.

·       Peeters, M. M., Verhoeven, L. L., van Balkom, H. H., & de Moor, J. J. (2008). Foundations of phonological awareness in pre-school children with cerebral palsy: the impact of intellectual disability. Journal Of Intellectual Disability Research, 52(1), 68-78.

·       Pirila, S., van der Meere, J., Pentikainen, T., Ruusu-Niemi, P., Korpela, R., Kilpinen, J., & Nieminen, P. (2007). Language and Motor Speech Skills in Children with Cerebral Palsy. Journal Of Communication Disorders, 40(2), 116-128.

Websites:
·       PubMed Health Cerebral Palsy (2012)

·       My Child Without Limits Cerebral Palsy (2012)
                 
·       Reaching for the Stars Cerebral Palsy Facts and Figures (2012)

Multimedia Examples:
·       Cerebral Palsy
o   Information video from the UK’s National Health services that discusses prevalence, causes, symptoms, and treatment; shows video of individuals with CP

·       Communication: children with cerebral palsy
o   Discussion of the necessity for and approaches to speech therapy for children with cerebral palsy


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